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教育王國 討論區 特殊教育 Down Syndrome - Not disable, differently abled..... ...
樓主: reginang
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[唐氏] Down Syndrome - Not disable, differently abled..... (Part 2) [複製鏈接]

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293
141#
發表於 07-6-24 22:45 |只看該作者

Re: Down Syndrome - Not disable, differently abled..... (Part 2)

lovematthew,regina

贂黎呢個湯又有營養又好味喎!
薯仔忌廉湯我都好鍾意架
等我第日又試試先!   

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293
142#
發表於 07-6-24 22:57 |只看該作者

Re: Down Syndrome - Not disable, differently abled..... (Part 2)

catca

剛剛睇了你的懷孕日誌
才知道你的情況!

我都唔知應該點講!
講真!雖然我自己做呢行
我對唐氏的小朋友一點反感也沒有
反而覺得他/她們好可愛
我而家有幾個最疼愛的學生
都是唐氏的!

可是
如果我懷孕時知道是唐氏的
我相信我不會選擇讓他/她來這世界
因為我的生命一定比他/她短
我老了後
又或死了後
他/她還會有人照顧嗎?
我不敢說亦不敢想!
如果我一定要帶他/她來這世界
我會覺得自己是一個不負責任的媽媽!

當然,人人選擇不同
我並不是說你做的不對
反而很欣賞你的勇敢、毅力及決心
我相信你的小朋友將來一定很幸福
祝福小B將來健健康康
我相信這對你們一家是最重要的!

加油!
你身邊有很多人支持你的!

Rank: 5Rank: 5


1731
143#
發表於 07-6-24 23:17 |只看該作者

Re: Down Syndrome - Not disable, differently abled..... (Part 2)

candy
你可以將matthew 平放在個ball 上面,用你的手hold 住他的腳,將他的上肢在ball 上前後推,當他接受了之後,可以嘗試大人hold 住他的腳,手以下及腰在ball 上,當ball 向前推時,讓他的手臂往地上按,或面向牆,將ball 向前推時,手可以按牆推,這樣可以幫助加強手力.
以前astha 返早期,治療師很多時都讓她面對著鏡來做動作,一來她喜歡望鏡,二來她也喜歡模仿,往往她不願意做一些或害怕做一些動作時,利用鏡可以幫她克服.

p.s. 我寫blog 的原因都是希望多d 人睇,多些人了解唐氏綜合症人氏,當然歡迎你參觀留言啦

Rank: 5Rank: 5


1731
144#
發表於 07-6-24 23:24 |只看該作者

Re: Down Syndrome - Not disable, differently abled..... (Part 2)

candy
你將薯仔湯煲好之後再整爛,好似薯蓉咁呢,又或者將d 料放入魚袋裡面煲,之後將袋整個拿出來壓榨,咁咪可以整到幼滑既cream soup 囉
lovematthew 寫道:
regina,
我今晚跟你一樣, 用了一斤薯仔+2個蕃茄+1/4個西芹+2大can cream做左個potato cream soup.
我無用攪拌器, 只用人手切粒粒然後來做湯, 口感無咁滑, 不過味道就好似, 好好味呢!
仲做左個白汁芝士直通粉, 用cream+cheese+mushroom+煙肉+有坑直通粉(好處係:d汁充滿了通粉中間, 好多時食意大利粉會沾唔上d汁的!!)
wow, tonight taste good!!

Rank: 3Rank: 3


293
145#
發表於 07-6-24 23:29 |只看該作者

Re: Down Syndrome - Not disable, differently abled..... (Part 2)

catca

補充一點
我和老公二人都未有做人父母的準備
我們都比較自私
希望工餘時間享受更多的私人時間
所以
如果連照顧一個普通的小朋友都覺得是負擔的
我們自然不敢承擔照顧一個唐氏小朋友的責任
所以
我的意見不能作準

希望我的說話不會影響了你的心情吧!
只要是自己選擇的
我相信你一定會是一個最稱職的媽媽
尤其是你有一個支持你的丈夫!   

Rank: 2


91
146#
發表於 07-6-25 09:35 |只看該作者

Re: Down Syndrome - Not disable, differently abled..... (Part 2)

My dear catca,

- Sorry, pls don't mind yuenfong and my opinion.
Hope you will not unhappy with those opinion.
Pls be a happy mother, I will always be your side, and many people is stay at your side.
- Maybe yuenfong not yet be a mother, so her opinion is little different with you and me, pls forgive.
Anyway, you're right. I'm absolutely agree with you that "We cannot not kill the baby, although surgical can. Because this is a life."
- I also will bring Matthew to this world if I know he is a down's baby, because he is a life in my body and I have not potence to control life (only God have the potence.) Thinks many mother will also make the same decision like you and me.
- Trust me, you are the most braveness and responsible mother in the world. I'm really agree with you. Don't cry, pls.  
- But I find that I'm stronger than before, becaus I'm gowth with Matthew at same time.
- God will bless of you. And I will pray to God for you. Let's be a strong, tough, brave and happy mother.

your friend,
Candy
My lovely Flora and my lovely Matthew.

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1731
147#
發表於 07-6-26 11:38 |只看該作者

Re: Down Syndrome - Not disable, differently abled..... (Part 2)

天氣咁熱,各位有咩消暑良方呢

如果tj 大個仔d,我實行日日周佢一齊去swimming  

catca
我都好鐘意下廚架,好多小笨友都好like 我整既野食

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1731
148#
發表於 07-6-26 11:47 |只看該作者

Re: Down Syndrome - Not disable, differently abled..... (Part 2)

catca
我忘記問你的聯絡電話,可否pm 我.
因我上次忘了給你一給關於唐氏寶寶資料的dvd,不知你有沒有,想借給你看看.

我給你的正能量是"不用怕,勇往向前走!"
你和先生都己是2子之父母,你們絕對有能力去照顧一個由上天安排給你們的小寶寶,祗要有心,我相信萬事皆可成.
我們做得到,你都可以做得到,加油,我地一齊支持你們一家!!!

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1178
149#
發表於 07-6-26 21:21 |只看該作者

Re: Down Syndrome - Not disable, differently abled..... (Part 2)


呢幾日hanhan發燒,去到40.4度,喉嚨發炎,今日才退燒,仲食緊抗生素.

天氣咁熱,戶外活動限於游水,近來hanhan同我都晒黑咗.

regina,下次我要食豬頸肉

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469
150#
發表於 07-6-26 22:15 |只看該作者

Re: Down Syndrome - Not disable, differently abled..... (Part 2)

hi 各位 !好耐無蒲頭
hanhanma: 40.4? 好高喎!  澄澄都病左成個多星期, 發燒1-2天退了後,  隔2-3天又燒過,  試過38.6度我都已經覺得好高. 驚佢肺炎鏈球菌. 今日睇第3次醫生, 因為鼻涕仲係好勁.

regina: 係咪好忙呀? 睇過astha & 細佬相, 好大家姐feel喎 ! 要兼顧2個, 係咪好難 ?  

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1731
151#
發表於 07-6-27 10:21 |只看該作者

Re: Down Syndrome - Not disable, differently abled..... (Part 2)

hanhan ma
原來閑閑病左仲咁高燒,真係辛苦你同daddy.
閑閑乖女,快d 好返食多野,要身體健康咁mami 就開心喇.

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446
152#
發表於 07-6-27 18:38 |只看該作者

Re: Down Syndrome - Not disable, differently abled..... (Part 2)

Dear all
Thanks for your concern. I only saw your messages today.
From the day I first decided to keep the baby, I've already thought the matter through. So I won't be disturbed by anoyone's opinions. I only need support now and then to keep going.
I don't think I'm being selfish at all, I am if I kill the baby becuz she doesn't look good enough or is not able enough. Even if she looks healthy in the womb, there can be problems during her birth or other mental problems that may appear later such as autism.
Afterall, this is a life. I'll be a responsible mother and so will my family. She is not only mine, she belongs to everyone of us in the family. I'm sure we'll all learn something in the course of raising this kid.
Thank you all for your kind support.

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446
153#
發表於 07-6-27 18:43 |只看該作者

Re: Down Syndrome - Not disable, differently abled..... (Part 2)

Hope Hanhan and Chelsea will get well soon.
Take care.

Rank: 2


91
154#
發表於 07-6-27 19:46 |只看該作者

Re: Down Syndrome - Not disable, differently abled..... (Part 2)

Dear catca,
Great to get reply from you, I'm really worry of you and wait for to hearing from you everyday.
Fully agree with you, you're so brave and responsible.
Just keep going and welcome to get supporting energy and any raising information from us.
Pls check pm which I send the mobile number for us, just feel free to me in any time if need. I will always be your side.
Keep smile!!

Your freinds
My lovely Flora and my lovely Matthew.

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1178
155#
發表於 07-6-27 20:37 |只看該作者

Re: Down Syndrome - Not disable, differently abled..... (Part 2)



chelsea ma,

好彩之前醫生話hanhan喉嚨紅腫,喉嚨發炎通常會很高燒.咁澄澄返咗學未?hanhan明天返.我放監la

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1178
156#
發表於 07-6-27 20:40 |只看該作者

Re: Down Syndrome - Not disable, differently abled..... (Part 2)



regina,

真係幾辛苦,hanhan發燒時要整晚睇住佢,因d燒升得幾快.我明天放監la   

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1178
157#
發表於 07-6-27 20:43 |只看該作者

Re: Down Syndrome - Not disable, differently abled..... (Part 2)



catca,

thanks.

我一定撐你ga

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1178
158#
發表於 07-6-27 20:52 |只看該作者

Re: Down Syndrome - Not disable, differently abled..... (Part 2)


candy,

Our Lord is with catca and would give her strength and hope, just like how He has looked after us during our rainy days.  Don't worry.

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469
159#
發表於 07-6-27 22:17 |只看該作者

Re: Down Syndrome - Not disable, differently abled..... (Part 2)

hanhanma: 澄澄只係無返2日學, 因為無人湊,  所以退左燒就返學, 有時返半日. 今日老師來電叫我早點接佢走, 因為今日又吾掂, 又嘔. 食左藥好攰. 不過返到屋企, 佢就好精神.

regina: how about you?

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1731
160#
發表於 07-6-27 23:38 |只看該作者

Re: Down Syndrome - Not disable, differently abled..... (Part 2)

chelsea ma
我本來打完比hanhan ma 個post 跟住想回覆你,不過細佬大人喊住口要食奶......  

湊2個,因為我埋身餵全人奶呢,現時真係幾難應付,雖然astha 都好關照細佬,但係,呷醋起上嚟都係一個難題,佢扭計要我果陣,但我又餵緊奶,真係左右做人難!  
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