好擔心...醫生話BB發展遲緩~~

ClaudeeMa

Thanks hinhinmummy for the great typing work!  Let me copy it down and try these exercises with my son tonight!

HelenMrs.Lau

     [size=xx-large]唔該晒HINHINMUMMY∼∼∼

陸美爸

hinhinmummy~

many many thanks

你啲資料對我嚟講真係非常有用喔~~

係呢...你軒軒返學肯食嘢未呀？

陸美媽

hinhinmummy

claudema, helen, 陸美媽

你們不駛客氣, 我只係互相幫忙, 尋日下午不得閒打埋果兩頁, 今日又放假, 要帶軒軒去大口環見心理學家, 所以聽日返工先打埋果兩頁.

係未搵到任何training之前, 大口環個st比的家課紙入邊的資料, 可以係屋企同佢地做住先, 如果不明的就問我們呢度d 媽咪啦.

因為當初我見完果個st之後, 佢話起碼要排半年先排到政府的st, 所以比張甘的野我, 叫我返屋企自己同軒軒做, 但又無教我點樣做bor, 所以當時我真係一頭霧水, 不知點樣用d玩具引佢.  如果有不明就問啦.

軒軒還未肯係學校食野, 人們食apple, 佢就'lam' apple, 但係屋企佢就好鍾意食apple架bor, 真係比佢玩死.

kakab105

hinhinmummy

唔該晒你呀 , 我都要加油喇！ 就去協康做評估喇 ， 好緊張！

ClaudeeMa

hinhinmummy,

Sorry for my ignorance.  Is hinhin also having development delay?  What treatment/training/service is he receiving now?  Is he going to a normal nursery now?  And are you waiting for 兼收 seat in nursery or SCC?

I'm now wondering if I should change nursery for my son.  He is now going to a normal nursery (without 兼收 seat).  It seems that the teachers there are not too experienced in helping him.  I just think that while waiting for gov't service, should I change him to the normal seat of another nursery (that offers 兼收 seat also) so that he can be taken care of the teachers with more experience to deal with kids like him?  And if later he needs to wait for 兼收 seat, he won't need to change school.  Or should I let him stay in his present nursery as he is very happy going to school everyday, and wait for gov't training service later on?  

hinhinmummy

ClaudeeMa

軒軒係6月初去大口環做評估, 當時醫生話佢係自閉症, 7月我們帶佢去養告再做一次評估, 呢個醫生話佢係pdd (綜合發展失調), 發展比正常小朋友遲12個月(不同發展有不同的遲誤).

不過同時兩個醫生都suggest佢讀scc, 本來今年9月已經讀k1架啦, 有學校收左佢tim, 不過臨時搵一間pre nursery比佢讀住先. 正常學校, 我不知佢有無兼收位, 不過協康d姑娘話有(保良局).

暫時我未知老師有無發現軒軒同其他小朋友有不同, 但就曾經問過我, 平時軒軒係屋企邊個take care, 父母多不多陪佢玩等問題, 還話佢係學校不出聲, 又不肯食野.  我都係見步行步.

我自己覺得, 既然學校收左佢, 不如比佢讀住先, 看下點啦, 你轉佢去有兼收位的幼兒園, 無錯, 佢地的老師有經驗, 所以一看(interview)就會知你個仔有問題, 好大可能會不收, 我自己就試過呢個情況.

未去保良局之前, 我同軒軒報名另一間幼兒園的, 拿報名表的時侯, 話還有位, 叫我上去, 跟住interview完之後, 又話無位, 當時我好不開心, 點解佢地不比機會軒軒?

政府方便, 我依家輪緊st, ot, 私人的, 我就比緊st, 同埋幼兒訓練比佢, ot未打算做, 因為實在無甘多錢&時間, 工人亦要兼顧大女, 湊返學放學等.

比心機啦, 幾個月之後(做左訓練)你又會覺得佢進步好多.

頭先剛去完做st, 姑娘話軒軒好明顯理解&玩玩具方邊進步左好多.  eye contact亦強左.

我成日諗, 不好label佢地係A 仔/A Features/global late development, 點都好, 只要有適當的訓練, 佢地一定會得的.  不過我們需要的, 只係要多一份耕雲.  人地一份耕雲, 一份收鑊, 但係我們可能要十份拼雲, 先得一份收鑊, 但係呢一份收鑊, 足以令到我們開心到好似中六合彩!

hinhinmummy

kakab105

做完評估, 記得上黎報告,  記住, 無論結果係點, 一定要冷靜, 不好諗埋一邊(希望評估不係甘差)

想當初我第一次做完評估, 我真係想抱住軒軒去死, 但好好彩我遇到一個好好心的基督徒的士司機, 佢開解左我, &鼓勵我令到我放途呢個念頭.

凡事總有解決的方法!

kakab105

hinhinmummy

我呢輪都好似痴左線咁 成日搵資料 買書睇 睇下點幫個仔 公司野咩都冇做， 之前又想私家同佢做評估，填好左問卷，佢叫我做 自閉既評估 (hk$3000) 我話考慮下先 好唔開心       

做完協康 我會盡快報告架喇!



:-|  :-|

mamee

以下一則posting, 是由思佳媽咪發出. 我覺得真是一番很有意思的說話, 亦很有鼓勵作用.

轉貼: From思佳媽咪
I have the impression that child assessment centre always diagnoses children as developmental delay or mild grade MR instead of autism, unless if the case is really typical autism. They are very cautious in mentioning this term. In fact, it is very difficult to define whether a child is autistic or not if he only gets mild A-features. There is also a saying:"每一個自閉的孩子都是獨一無二的".
I, like you, trying very hard to find out whether my son is autistic or not when he was young. I brought him to govt. psychiatry, clinical/edu. psychologists, OT & ST. All these specialists could not give a definite answer. Nearly all of them told me that it was meanlingless to diagnose whether he was autistic or not. The most important thing was to accept him, find out his strong & weak points and help him in his development.
Years passed. My son's mild autistic features, though mild, never diminish. However, he is continuously progressing. For example, he is stubborn in the changing of routes to places, changing of placement of objects.... But now I can discuss with him & he is willing to make compromise. This also turns to his good habits - he is a very tidy person and keeps his belongings tidy and in good condition. He has very good memory - this ability helps him in dictations & he always gains high marks in this field. However, I have to accept that he is extremely weak in abstract & logical thinking, he can only communicate in simple dialogues, he is lower than average in IQ, he is weak in social interaction......
I also met some teenagers with mild A-features/normal IQ in Caritas . Most of them are progressing well, can finish secondary education & vocational training.
Being parent of special children, our road is harsh. It is also life-long!

ClaudeeMa

hinhinmummy, mamee, thanks!

I'm so touched!  And still very worried.   
I think I should wait for the assessment result before I make decision to switch school for my son then.  To tell the truth, I've been too focued on my daughter's (she is now 5) side.  Everyday after work I am busy in checking her homework, guiding her to practise piano, accompany her doing other things such as reading.  Every weekend, I take her here and there to attend interest classes....etc... I really did not give much time in communicating / playing with my son.  Now I find out my son's problem and I feel so sorry to him that I have been ignoring him so badly.    .....

ClaudeeMa

hinhinmummy,

Is your ST good?  May I have his contact please?  How much is the charge?  Thank you.

HelenMrs.Lau

ClaudeeMa 寫道:
hinhinmummy, mamee, thanks!

I'm so touched!  And still very worried.   
I think I should wait for the assessment result before I make decision to switch school for my son then.  To tell the truth, I've been too focued on my daughter's (she is now 5) side.  Everyday after work I am busy in checking her homework, guiding her to practise piano, accompany her doing other things such as reading.  Every weekend, I take her here and there to attend interest classes....etc... I really did not give much time in communicating / playing with my son.  Now I find out my son's problem and I feel so sorry to him that I have been ignoring him so badly.    .....

   e~~~你講D

kmwun

ClaudeeMa

我都建議你等個報告出左先，太多或者太密嘅改動，無論你或小朋友都會好難適應．你都係盡力為小朋友好，如果睇番以前永遠都會找到做得唔夠好嘅地方，不如向前睇，睇下以後應該點做會好d．我都好明白心情會好差，試下放鬆d，唔好只係顧住小朋友，都要照顧自己．我間中會約朋友食下飯，傾下計，有時需要俾d空間自己同小朋友，有時停一停，抖一抖再嚟過效果可能會好d．

    

gigi2

The same......




[quote]~~~你講D

mickeyma

same as me ah...

Hei媽

Thank you hinhin mummy to make this effore.  It really useful.

請各位容我 update

HelenMrs.Lau

[quote]
Hei媽 寫道:
Thank you hinhin mummy to make this effore.  It really useful.

請各位容我 update

Hei媽

熙熙2/10足2歲,所以4/10就入學. 學校是有兼收位,但我是自己報名的,不是經政府派位,因未足2歲是不會派位的,因我覺得她們有這方面的經驗是比較好的.我都希望日日對住老師及同學可以幫到他.

謝!

kimbear

多謝各位的鼓勵及關心

幼兒園的老師及園長商量後,認為亞仔咬自己可能係出牙牙痛,又有可能不熟識新環境所以不安,所以決定叫工人暫時陪住亞仔上堂先,等佢先熟識吓學校環境,因為只要工人在場的話,亞仔就好定,吳會”樓計”及咬人or自己

Hei媽:

“公”喜晒妳