"Biomedical Treatment - Parents' Group "

mickeyma

Kawai,

Yu did give us some feeling these days that he is on some miracle change again from one step to another step up.  But I do not know it is a coincidence or not. And I do not know whether it is anything to do with those supplement or injection.

He can be bargainned, he has more and more initiate language to put forward his request.
You will see he is thinking when you are talking to him. He will invite us to play with him such as :
He wants my husband and I to swing him while he is rolling on the big blanket, and imagination game as sitting on the bus to go to somewhere...
He quoted the sentence from the VCD, but use those sentence in a quite approprait situation..

This afternoon, we went to Bio-Tech.. Antony who got the blood from him thought he was quite normal in behaviour and answering question... (a short term fake impression )
Another obvious improvement is he will walk all by himself these days   Today we had long journey fm Hunghom to Bio-Tech and from Wanchai back, he did walk all by himself. And when he played together with a small girl in front of the soft drink machine, I was deeply moved. He enjoyed a lot to play together with her and even pointed her and said to me : I am playing with little sister... and tried to hold her hand while the ferry came.

Hope these good things will go on.. though it is so NORMAL for NORMAL kids. It is so precious for our kids.  He still has many things to improve...

I will visit Dr. Lam again when my supplement finished.

[quote]
kawai 寫道:
mickeyma,
Have you found any effect from your son after taking the B-12 injection?  I guess Dr. Lam wanted to pull out the hidden heavy metals by the B-12 injection and those supplements before proceeding to the hair test.   

kawai

Dear mickeyma,
Bio-treatments seem to be the right click to your son.  Keep posting on his progress when you've more surprises.   

Dear Mrs. Cheung,
Since my son has no significant improvement after 3 months of B-12 injection.  I'll probably change to sublingual with no hesitation after finishing the doses from the fridge.  Besides, we went to see Dr. Trodd today.  I asked him to prescribe Carnosine which may help speech development.  Is that the one you mentioned?  My son seems to reach the maximium possible gain from Bio-treatments after 6 months of supplements.  We're now thinking about Homeopathy.  I've contacted one of the well-known homeopathic practitioners in US who is a specialist on development disorder.  We'll use video conferencing for consultation later.

HayBmum,
When did you see Dr. Trodd lately?  I thought you've just visited him after he came back from the trip.  You should think about to shift to sublingual if it could be a substitute.  I really want to know the answer from Dr. Trodd as He told me that the oral B-12 is useless when we first visited him.     

     
   

HayBMum

Kawai,
I saw Trodd yesterday at 9:30. When was your appointment with him?  
I think the B12 injection is helpful to my son as his glutathione level was in the normal range according to the blood analysis done by Dr Jill James.  I will check with Dr Trodd on my next visit (2 weeks later) on the sublingual form.

I will add the glutathione from Lipoflow to my son + Nystatin to control the yeast.  Will see how it goes.

Hope my son's hair test result will show the reducing level of toxic metal.  I don't want him to try the chelation therapy.

kawai

HayBmum,
We arrived to Trodd's clinic at 10:00am.  You probably left in a few mins before we got there.  We met Twinky2000 while we were about leave.  

mickeyma

Dear All,
Will the B12 injection or supplement make kids restless... I doubt that as Yu's teacher commented that he was leaving his seat quite often these days. Seems before it was better.
Mickeyma

HayBMum

my son was hyperactive at the initial stage of receiving B12 injection.  After reducing the dosage to 1/2 but still maintaining twice a week, his behaviour was back to normal gradually.

How many times did Yu take the B12?  I thought it was once only.  What other supplements that he is currently taking? It seems that the side effect of B12, if only once, should not last that long.

mickeyma

HayBMum,
Actually once only when we visited Dr. Lam. on 9th of Aug.. Other supplements are mainly vitamine and mineral elements.
Anyhow, I asked the teacher in the school to monitor his behaviour these days.
He was dreaming and sobbing this early morning, saying: Mummy plays with me at home! and sometimes would stop on the way to school, calling: 姐姐
I think the leaving of the maid might have some bad effect on him.

HayBMum

mickeyma,
I think it should be due to the new environment / leaving of the maid instead of MB12 injection.  From my own experience (of course it is quite limited), my son will only be hyper in the first 1-2 days immediately after the injection.  His behavior will back to normal thereafter until the next injection.

mrsphcheung

Dear all,
My son has eaten normal food for a few weeks because of taking food allergy test.  There is no change in his speech and learning ability, but he tends to be very impulsive and more inattentive.  He used to be better-discipline while taking CFGF and rice-free diet.  I am very sure that there are some food which aggravate his behaviour.  I will implement a much more restrictive diet for him once the test result is out.  

Dommom

Hi all,

Just want to share with you all : my kid went to Dr. Trodd on Monday for the same food allergy IgG and IgA test.  There is an additional test needed to determine if he is allergic to gluten.  I feel more comfortable to go to Dr. Trodd since I know he will interpret the results of the tests for us.  The cost is much higher than Biotek though.

mickeyma

Ms Cheung,
Is the rice also forbidden in the CFGF diet?

Kawai,
Yu has more and more 插嘴 recently. When we talked about his sister's activities in Fuzhou during dinner time, he added in : we went to Spring Park too.  I immediately reacted to him: Yes, there is a sand park inside there.  And he continued: to sand park, we must take off shoes...    
And he said : sister is in Fuzhou now. Hoyu is at home. I immediately added: yes, Hoyu is in HongKong.
My 99 commented his eyecontact is quite good since the return from the Fuzhou trip, so as his skill to communicate.. do not know the result is from his trip or the Bio-treatment. Maybe both..  Keep on    
How is Jason's improvement with intensive ABA training? I have great insterest to know.

mrsphcheung

Dear Mickeyma,
Rice is not forbidden in CFGF diet.  I try a much more restrictive diet --- Specific Carbonate Diet which excludes rice in the menu.

mickeyma

真的好佩服您們的毅力！:hammer

mrsphcheung 寫道:
Dear Mickeyma,
Rice is not forbidden in CFGF diet.  I try a much more restrictive diet --- Specific Carbonate Diet which excludes rice in the menu.

:

mrsphcheung

Dear all,
I have a strong belief that if I give up helping my son, nobody will do anything for him.  Because of this, I must try any possible method to help him to overcome his problems.  

As all my family members will eat the same as what my son eats, he has no way to complain.

kawai

Hi all,
I've been spending much time on yahoo discussion group for the past few days.  I highly recommended this chat room in order to know more about the latest alternative treatments and training methods for autistic kids by parents in US as well as other countries.

http://health.groups.yahoo.com/group/Autism-Mercury/

Do join the group and you will find topics related to autism in this chat room.

Dear Justin2000 and chanchanboy,
I fully understand that the difficulty of GF diet.  I've given it up gradually since I introduced AFP-Peptizyde (enzymes) to my son.  He's doing fine now with the enzymes and his eye contact seems better than before.  I found enzymes are the most effective stuff among those supplements.  It's worth to try if you're unable to introduce any special diet to your kid.      

Here's the chat room about enzymes:
http://health.groups.yahoo.com/group/EnzymesandAutism/

mickeyma,
My monkey boy is doing fine with both ABA and bio-treatment.  Some regression may happen within a few days after introducing new supplements.  I had a hard time since last Sunday since new supplements have been added after last visit to Dr. Trodd.  Don't worry too much about the side effect of B-12 injection since your son has taken one shot only.  I guess the natural chelations like L-glutathoine and ALA did stir up the heavy metals and start working in your son's body.  Negative side effects usually last for a few days only.      



     
   

mrsphcheung

Dear Stella,
My sacrifice is very little compared with you; you even quit your job to take care your children....      

mrsphcheung

Dear all,
Here is the details of the DAN doctor in HK for your reference:

Tim Trodd, M.B., B.S.
Room 1501
Shui on Centre
8 Harbour Rd.
Wanchai
Hong Kong
tel: 2824 9112

mrsphcheung

Dear Kawai,
My son is also taking AFP-Peptizyde (enzymes).  So far so good.  His stool is fine.  

How about the order of PCA-RX?  Thanks.